The Bear With Bells Palsy. Update.

I thought I’d share a little update with you on Bear’s Bells Palsy.

It’s been about 6 weeks since it first happened and I have to say he’s recovering fantastically.

We were initially given a time frame of 6 months, which although sounds like a long time, it was nothing compared to the future that lay ahead of us at one point in time when we thought he’d either had a stroke or a brain tumour. Compared with that resulted 6 months of symptoms seemed like nothing. I would’ve welcomed 60 years of symptoms over a brain tumour in my tiny 5 year olds head.

But I’m a matter of weeks, Bear has almost fully recovered physically. At least from a distance. If you ask him to stand in front of you and pull certain faces you are able to see the weakness and the same can be said of his resting face, however the best part is that he is now able to keep his eye shut at night without it being taped. That in itself is huge! And a big relief for us.

Now he’s off the steroids his emotions are calming right down and he’s not so self conscious about his smile anymore which was one of my main concerns. No child should feel uncomfortable when they smile, no matter what they look like.

The paediatric consultant discharged us this week and feels confident that it is unlikely this would happen again – to highlight how rare it is in children, she’s only ever seen it once before – although I think I will forever be a bit paranoid about him getting over tired or poorly.

Neurotic? Me? How dare you.

In other news the ENT consultant – we were being treated by two different branches of care – decided that he will do a three for one hobby on Bear and whilst fitting grommets, he will whip out the poor little dudes tonsils and adenoids at the same time.

Brutal.

I know I should be overjoyed at this (not least because we are so fortunate to have excellent healthcare for free) because it is what is needed to help prevent the recurrent ear and throat infections that he has and hopefully give him better hearing, but, this means general anaesthetic.

I know it is routine.

I know this procedure happens daily, up and down the country. But that doesn’t stop a Mum from worrying when they’re smaller-than-average 5 year old goes under.

I’ve already put The Bearded Manc on warning that I will be a nervous wreck. Not right away perhaps, and certainly not in front of the Bear, but once he’s out and fine and I’m left alone for a few minutes. I know I’ll be a mess of relief.

My Bear is nervous. He knows all too well what it feels like to have injections/needles in his hand and he’s now so frightened of that part. They hurt him last time. He’s asked if he can have the finger prick type of injection instead. I’ve told him no. He’s asked if I’m going to let them cut his tongue out with a knife from the kitchen. I’ve explained that would never happen and what it is they are actually doing but he’s 5 and so to him it sounds barbaric. It probably is.

I know he’ll be in pain and will need around 2 weeks off school so we’ll get stuff in place to prevent him from falling behind whilst also keeping his little brain and imagination engaged.

I’m not looking forward to it but it has to be done and Bear is temporarily placated by the idea of a small present for his bravery. Yet to be negotiated upon.

Anyway, that’s where we are up to. Once we have a date for his op, I’ll let you know.

Thank you for all your support, well wishes, presents, cards and love. It means so much to us.

2 thoughts on “The Bear With Bells Palsy. Update.

  1. Aww bless little Bear and thinking of you all having to go through this ordeal. Very pleased to hear he is getting over the Bell’s palsy quicker than anticipated he’s a strong brave little boy and has a very strong mum dad & family to support him through this tough time. Sending big hugs to you all lots of love xx😘😍

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